Jordan.

Oct. 14th, 2010 03:32 pm
navygreen: (ER: Carter)
[personal profile] navygreen
A.J. has a classmate named Jordan. Jordan was in his 6th grade class last year, and this year, they are in a few classes together in middle school. However, their lockers are side-by-side, so he and A.J. would briefly chat between classes while getting their things.

A little over a month ago, Jordan dropped his book one morning while switching classes. A.J. noticed, and after a few seconds, he offered to grab it. Jordan snapped at him, "Leave it alone. Leave me alone!" A.J. didn't understand what he had done, and his feelings were hurt. He left for the next class, however. Jordan was still standing in the hallway alone...

The next day, after first period, Jordan dropped his book again. This time, he bent to pick it up, then yelled, "I can't move up!" A.J. reached for his arm to help him, but again Jordan lashed out. Instantly, the geography teacher was at the lockers, and she thanked A.J. and ushered him into her classroom, telling him the principal would help Jordan.

The next morning, at the start of the day, the students were addressed. Jordan had been stricken with a severe muscle disease, and he was unable to move hardly anything. It had hit very suddenly, starting just two days before. The teachers answered a few questions, but much was unknown. Jordan didn't have an official diagnosis, and he and his family were headed to Minneapolis for two weeks for answers.

A.J. came home talking about it, and that was the first I heard of the locker incidents. He explained everything as best he knew, but he still wondered why Jordan had yelled at him. I told him that Jordan had likely become VERY scared VERY suddenly, and he'd not known what was going on. (I can't even imagine what the poor kid went through, as well as continues to go through.) A.J. could understand that, and he expressed a hope that Jordan would get better.

Two weeks ago, Jordan returned to school. As far as the kids know, his condition is still unclarified. He attends for two periods in the morning, and then he returns for the last period of the day. Earlier this week, we were discussing Jordan again, and I was getting those details from A.J. over dinner. He was explaining how either Jordan's parents or the teachers wheel him everywhere. I asked suddenly, "Can he still move his fingers?"

A.J. answered that yes, he could. I then said, "Well, they make motorized wheelchairs that you can control with just your fingertips. I wonder why he doesn't have one of those." (I was speaking as quickly as I thought it.)

A.J. looked me square in the eye, tilted his head just a bit, and said softly, "Mom, his family can't afford those kinds of wheelchairs."

...

Oh, my my. Oh, my heart broke even more! I just hadn't thought through all of it yet, you know? I am so clueless, so blessed by my healthy children and family, so very naive. The poor Chambers family!

I know the mother worked as the head cashier at Jack's elementary school. She is a very friendly woman, always chatting nicely with me or Philip when we attend Jack's lunch. Her daughter was on his indoor soccer team last winter, and they are a sweet family. She has had to quit her job to provide care full-time for Jordan, and I'm sure that is just a financial strain added to everything else. (I wondered where she had been for a few weeks. I hadn't seen her several Wednesday lunches in a row.)

During conferences, the middle school had a lady selling jewelry in the hallway, and all of her profits were donated to the Chambers' family. In addition, tomorrow night, the school is hosting a fun night for the kids, where they can come and party, paying extra for the chance to fight each other in Sumo wrestling suits. All of the admission costs and proceeds will be donated to the family as well.

I've asked both schools to let me know if I can bake something for future events - something they can sell and turn the money toward the family. The elementary principal hadn't even thought of having an event before, but hopefully now there will be something planned. In the meantime, all our prayers go out to Jordan Chambers and his family.

Date: 2010-10-14 08:38 pm (UTC)
From: [identity profile] wholuvsya.livejournal.com
I am sure it's been suggested to the family BUT on the off chance it has not-please have them check with Shriner's Hospital (not sure where the one closest to you guys is) and Easter Seals; both of those organizations will help with medical equipment and help cover costs of the care he needs to get. God bless that family.

Date: 2010-10-14 08:49 pm (UTC)
From: [identity profile] butterflymama3.livejournal.com
How awful. St Jude's is a place to check too. Depending on what his diagnosis is MDA might be able to help too.

Date: 2010-10-14 09:55 pm (UTC)
From: [identity profile] teacher-tabi.livejournal.com
Wow, that is so sad and scary! I can only imagine how difficult that would be. We all take for granted that our children are healthy, especially as they get older and older. This makes me definitely feel blessed.

Date: 2010-10-15 12:01 am (UTC)
From: [identity profile] prosodic.livejournal.com
Bless you for having a son who is so sensitive and who cares so much! We need more kids like that in schools to combat all the bullying.

Poor, poor Jordan. :(
Edited Date: 2010-10-15 01:28 am (UTC)

Date: 2010-10-15 01:42 am (UTC)
From: [identity profile] 1grl-revolution.livejournal.com
Oh my goodness, that poor, poor boy and his family. :( How nice that your community is banding together to help him.

Date: 2010-10-15 02:45 am (UTC)
goodjoan: (Default)
From: [personal profile] goodjoan
Poor kid, and poor family! A.J. is a sweet kid to be so concerned, and so open to understanding why his friend lashed out at him when he was scared. I hope the family can find a diagnosis and get him some help quickly. Like others have suggested, contacting whatever support group applies is a great first step. They'll get moral support right away, but also, many groups have funds available for supplies like wheelchairs, or home improvements, like adding ramps or widening doors.

I think band aid shaped cookies would be totally cute for a fund raiser for him :)

Date: 2010-10-15 09:55 am (UTC)
From: [identity profile] aiseiri-47.livejournal.com
The thoughts of how quickly a crippling illness can strike is quite terrifying, and it seems so unfair that it's so financially difficult to support a sick child :(

One thing is for sure, A.J. is a wonderful boy, and it has to be because he has a wonderful mother. You should be very proud ♥

Date: 2010-10-15 06:51 pm (UTC)
From: [identity profile] annaed770.livejournal.com

I'll certainly be praying for Jordan and his family;what a scary and difficult time for all of them! While I consciously try not to ever take it for granted,I sometimes forget how lucky I am to have three healthy,active children,and this is one of those times I am reminded about how delicate that balance can be.

The fact people,including yourself,are already rallying to raise money for the family is just absolutely awesome,and I am sure the Chambers family will feel very blessed to live in such a wonderful and caring community. Despite the miles between us,if there is anything I can do too then please let me know! :)

Date: 2010-10-18 05:08 pm (UTC)
From: [identity profile] jillerbob.livejournal.com
There are websites that offer used medical equipment unfortunately childrens. from kids who have passed or have outgrown it and the families want to get some money out of it. Maybe they could work something out with insurance to help if the had a used one. I'm sure they prolly went to shriners since they were in Mpls since thats the one that serves the area. They may be going through the process of getting one with insurance but with our Abbey we are doing that now and are told that it can take anywhere from 6 mo. to a year for them to approve it. I would make sure that they are in contact with the local public school system to get like PT and OT and all their resources that are available, they know about support groups and can help with a wide variety of things and if they dont know they can usually help out. It is very hard being the parent of a medically fragile child and even the littlest thing helps I know she really appreciates everything you are doing. Thank you

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